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I am working on putting a positive spin on the ending of my clinical trial. I met with my oncologist today, and we discussed what will happen moving forward. I will see her every 12 weeks and have a CA-125 every six weeks. I am now much more familiar with what symptoms to look for, so I can see her sooner if I feel like something is amiss.

And I think I’m okay with this. I got the immunotherapy drug for almost a year, so if, indeed, it was helping me, the effects will carry forward. And I will now have a much more flexible schedule. No bloodwork every other Monday and infusion every other Tuesday.

While I won’t stop looking over my shoulder, I do feel I am at peace with this decision. While CA-125 is not a good indicator for everyone, it is for me, so having that checked frequently will give me peace of mind. In addition, my physician is going to test my tumor for mutations, so if I do have a recurrence, we will be more prepared with an appropriate treatment.

On the way home from Hopkins, Jerry and I discussed where we might go next. Maybe Charleston for a few days; definitely someplace warmer. It is a plus to be able to make plans without having a mandatory infusion to work around.

There is no question this diagnosis and treatment changed my life. But I feel fortunate that I live in a city where I can get some of the best treatment anywhere and have a team that will stick with me. Maybe I will never have a recurrence; I’d like to hope so, but realistically that scenario is not likely. In any case whatever happens I remain optimistic that I can get through this. I feel good, and most likely my energy will increase now that I am off the trial drug.

A local wine shop is doing a Malbec tasting this evening. Jerry and I will go, taste some wine and enjoy ourselves. And as days go on, I will feel more strong, confident and happy to be alive.

Comments

  1. UnknownJanuary 3, 2019 at 5:58 PM

    I have cousins in Charleston. Let me know if you plan to go and maybe I can take a long weekend.

    ReplyDelete

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